Primary Sclerosing Cholangitis
Daniel Nisonger's Bio
Update – July 10, 2014
Daniel Nisonger was diagnosed with primary sclerosing cholangitis an autoimmune disease that affects the bile ducts in the liver and causes cirrhosis. In 2011, he received a new liver, but unfortunately due to no fault of his own, the liver developed cirrhosis once again due to a blockage that formed in his hepatic vein. Daniel has had numerous hospital stays since his transplant and has been placed on the Transplant list at the University of Maryland Medical Center once again.
Over the past 3 years Daniel has fought to try to live a normal life continuing his work at St. Peter the Apostle Catholic Church in Libertytown and volunteering at Donate Life Maryland. He credits his faith, family, and friends for giving him the strength to continue on this journey. Daniel is forever grateful for the support he received and continues to receive while going through this difficult time in his life.
Each day, Daniel wakes up and takes over 20 which include costly anti-rejection pills and medical bills are mounting. He currently requires at least one upper endoscopy procedure every 2-3 weeks to help prevent variceal bleeds. These procedures lead to the creation of bleeding ulcers in his esophagus, which require that he stay in the hospital up to 5 days at a time. Please join us in helping Daniel and his family not focus on the bills but on getting him well.
Update December 2012:
It has been a little over a year since Daniel had his liver transplant. He has overcome so many obstacles since his surgery, but still continues to face new ones as his body continues to adapt to his new liver. He continues to have to stay on expensive anti-rejection medications, which have adverse side effects on his body. He has had several procedures to try to remove liters of fluid that continue to accumulate around his right lung, but unfortunately nothing has worked permanently thus far. He will need to have a surgery in January that will require a 10-day hospitalization. However, despite these and other obstacles he has made it to his one-year mark and was able to walk in the Donate Life Maryland family and friends fun walk, a personal goal he had set for himself. So, as he continues to battle with Ulcerative Collitis and the aftermath of his liver transplant we are so thankful for all the help and prayers we receive via this website. Thank you and may God Bless you!
My name is Melissa, and today I have the pleasure and honor of introducing you to the man I was lucky enough to meet and fall in love with, Daniel Nisonger. I did not meet Daniel until he was 24 years old and when I think about it, it is hard to imagine that he had already been battling Primary Scleroscing Cholangitis for 9 years before we met. He was 16 years old when he was diagnosed with indeterminant colitis an inflammatory bowel disease & primary scleroscing cholangitis, a rare liver disease that damages and blocks bile ducts inside and outside the liver. In PSC, inflammation of the bile ducts leads to scar formation and narrowing of the ducts over time. As scarring increases, the ducts become blocked. As a result, bile builds up in the liver and damages liver cells. PSC, prevents the livers ability to regenerate healthy tissue. Eventually, scar tissue spreads throughout the liver, causing cirrhosis and liver failure.
Initially Doctor’s were unsure he would make it past the age of 25. If I had to think of one word to describe Daniel it would have to be amazing. Amazing not only because I am witness to his day to day struggle with the disease, but amazing because I have yet to see him ever use his disease to be a crutch or as a reason not to go after what ever he has wanted in life. Despite his being diagnosed in high school he still played on his high school basketball team, graduated from Linganore High School, then Salisbury University, ventured out and moved to Florida, met and married me, purchased a home in the neighborhood he grew up in and most recently started his own company while volunteering as a high school basketball coach in Urbana, Maryland. All along, still finding the time to play on an intramural softball and basketball team.
Throughout all these major life events Daniel’s disease was always in the background; he has never allowed his disease to dictate the goals he was setting for himself and his willingness to accomplish them. Daniel always opted not to publicize the endless procedures, hospital visits, and blood work. So much so that it was not uncommon for those around Daniel to sometimes forget that Daniel had PSC at all. In February, 2010, Daniel’s doctors decided to place him on a liver transplant list. I can honestly say that it has not been easy to watch him go through this process, but Daniel has continued to thrive despite the increasing pressure due to medical costs and as his symptoms have intensified even taking a week this summer to travel with our church to Appalachia West Virginia to help renovate the homes of those less fortunate. I know that we will get through this difficult time because it is Daniel’s conviction that his inevitable liver transplant is only one of life’s many hurdles to overcome which has fortunately only brought our family and friends closer to us and made us appreciate the love we have for each other. We thank you for taking the time to read about Daniel and the incredible man he is, we hope with this transplant he will get the chance to continue inspiring those around him.
Thank you in advance for bringing us one step closer.
Currently Daniel is still in ICU at Georgetown University Hospital. He is very sick and needs a liver.