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Tyler Condren
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TYLER
CONDREN
http://www.caringbridge.org/visit/tylerc
Several
Fundraising Events planned for Tyler
Click for more Information!
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TUESDAY, DECEMBER 16, 2008 12:29 PM, CST
It appears that the radiation is still
on for tomorrow for Tyler. The general
consensus regarding treatment at this
point is to keep him on the Temodar
through the cycle. He will not be
getting the Avastin/CPT-11 anymore.
There doesn't appear to be any clear
benefit. This will allow him to have a
better Christmas, Birthday and New Years
Eve. Any new treatments will not start
for 2-3 weeks after this radiation and
we won't know what treatments are
available until after he finishes the
radiation and his neurological status is
reassessed. His mental status right now
seems okay. His memory is not good, but
he has most of his words back. He is a
little wobbly, but can get around
without help (except for the stairs). He
is napping right now. He probably is
sleeping around 12 - 13 hours daily
combined. When he is awake, he is alert
and happy, his only complaints are his
esophagitis and once daily vomiting. We
are trying to get these under control
with meds. I have been scouring the
internet looking for treatments which
might make a difference in his life and
so far, I have found a few. The docs
will review these and come up with
something, whether clinical trial or
just some combo of meds.
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MONDAY, DECEMBER 15, 2008
10:31 AM, CST
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Well, unfortunately Tyler's fragile condition has taken a turn
for the worse. On Friday, he
suffered his first seizure.
I was terrified.... He was
stabilized at Frederick
Memorial and transferred to
Children's where an MRI
revealed tumor progression.
It's certainly devastating
news to all of us. We were
really hoping Avastin would
be the drug for Tyler, but
unfortunately it just wasn't
meant to be. Since the
seizure, Ty's cognitive
function has deteriorated to
some extent. His short term
memory is shot. He has
aphasia. He has trouble
remembering people's names,
but does recognize faces. He
has had his decadron
increased from 1 mg/day to 6
mg/day. This will hopefully
prevent more seizures and
help him clear his mind.
Over the weekend his
cognitive function did
improve a bit and there is
hope that it will continue
to improve, but there are no
guarantees. His neuro-onc
team is meeting today and
will try to come up with a
new treatment plan. Eric and
I know that our treatment
options are extremely
limited and frankly there
might not be anything else
the docs can do at this
point. Tyler has been told
of his situation, but it is
unclear how much he
understands. I am hesitant
to keep bringing it up with
him because I really don't
want to shove it down his
throat. Especially if he
gets it and just doesn't
feel like dealing with it.
Our hope right now is that
he remains stable for
Christmas and his 12th
birthday two weeks away.
Right now, he is relatively
happy, he is playing with
his laptop and relaxing on
the couch.
Note from the PPF: Please keep the Condren Family in your
prayers for strength and
peace- for when you have
peace you are in oneness
with God. |
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Tyler
is a pretty typical 6th grade boy. He is
11 years old and enjoys playing video
games and playing baseball. His favorite
team is the Baltimore Orioles. He is
close to his 9-year-old sister, Hannah,
but like most siblings they constantly
get on each other’s nerves. Despite
having a high functioning form of autism
and ADHD he still excels in school. He
is an honor roll student at Walkersville
Middle School and plays drums in the
jazz band.
His battle with cancer began on April 3,
2008 when he went to the doctor’s for
what everyone thought were headaches
caused by allergies. His pediatrician
could not find a reason for the
headaches so he was sent to the hospital
for testing. A CAT Scan revealed a mass,
which they said was likely a brain
tumor. Four days later at Children’s
National Medical Center he had surgery
to remove the tumor.
Tyler’s cancer turned
out to be a very aggressive form known
as Glioblastoma.
Unfortunately, Tyler’s tumor did not
respond to the standard therapies of
radiation and chemo. His tumor has grown
and spread throughout his brain leaving
the doctors with very few options for
treatment. Although Tyler is stable for
the time being, if his tumor doesn’t
respond to current therapies, it will
likely prove to be fatal in a few
months. His parents have been scouring
the internet looking for any hope with
alternative therapies. These treatments
will be extremely expensive and
insurance will not cover them.
Please visit
http://www.caringbridge.org/visit/tylerc
for on going updates.
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Fundraising Events planned for Tyler
Thank you for
your support! |
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Hair’s How You Can Help
Old Towne Hair Design & Colour
Studio is sponsoring a fundraiser
for Tyler. The day’s collections
will be donated to Tyler Condren’s
fund.
Please join us in supporting this
family in need and treat your family
to:
An impressive Haircut for
adult/child
suggested donation - $35/$15 (adult
cut regularly $55)
A soothing seated neck and hand
massage - $15
A raffle for Incredible Old Towne
Gift Baskets and more
SUNDAY SEPTEMBER
21,2008 1:00-6:00 pm
Old Towne Hair Design & Colour
Studio
201 Loudoun Street SW, Suite A
Leesburg, Virginia
703-779-2224
PLEASE CALL TO RESERVE YOUR TIME,
WALK-INS WELCOME
All other donations are gratefully accepted.
Make checks payable to: PPF Inc.
Click for
Printable Flier for this Event!
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