(Patty Pollatos Fund, Inc.)

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Welcome to
PPF, INC. web site. 

Would you like to add someone to our Prayer List?
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Debbie Williams at
debbie@ppfinc.org
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Never doubt that a
small group of caring, committed people can change the world. Indeed, it is the only thing that ever has.

 

Tyler Condren

TYLER CONDREN

http://www.caringbridge.org/visit/tylerc

Several Fundraising Events planned for Tyler
Click for more Information!

 

TUESDAY, DECEMBER 16, 2008 12:29 PM, CST

It appears that the radiation is still on for tomorrow for Tyler. The general consensus regarding treatment at this point is to keep him on the Temodar through the cycle. He will not be getting the Avastin/CPT-11 anymore. There doesn't appear to be any clear benefit. This will allow him to have a better Christmas, Birthday and New Years Eve. Any new treatments will not start for 2-3 weeks after this radiation and we won't know what treatments are available until after he finishes the radiation and his neurological status is reassessed. His mental status right now seems okay. His memory is not good, but he has most of his words back. He is a little wobbly, but can get around without help (except for the stairs). He is napping right now. He probably is sleeping around 12 - 13 hours daily combined. When he is awake, he is alert and happy, his only complaints are his esophagitis and once daily vomiting. We are trying to get these under control with meds. I have been scouring the internet looking for treatments which might make a difference in his life and so far, I have found a few. The docs will review these and come up with something, whether clinical trial or just some combo of meds.

MONDAY, DECEMBER 15, 2008 10:31 AM, CST

Well, unfortunately Tyler's fragile condition has taken a turn for the worse. On Friday, he suffered his first seizure. I was terrified.... He was stabilized at Frederick Memorial and transferred to Children's where an MRI revealed tumor progression. It's certainly devastating news to all of us. We were really hoping Avastin would be the drug for Tyler, but unfortunately it just wasn't meant to be. Since the seizure, Ty's cognitive function has deteriorated to some extent. His short term memory is shot. He has aphasia. He has trouble remembering people's names, but does recognize faces. He has had his decadron increased from 1 mg/day to 6 mg/day. This will hopefully prevent more seizures and help him clear his mind. Over the weekend his cognitive function did improve a bit and there is hope that it will continue to improve, but there are no guarantees. His neuro-onc team is meeting today and will try to come up with a new treatment plan. Eric and I know that our treatment options are extremely limited and frankly there might not be anything else the docs can do at this point. Tyler has been told of his situation, but it is unclear how much he understands. I am hesitant to keep bringing it up with him because I really don't want to shove it down his throat. Especially if he gets it and just doesn't feel like dealing with it. Our hope right now is that he remains stable for Christmas and his 12th birthday two weeks away. Right now, he is relatively happy, he is playing with his laptop and relaxing on the couch.

Note from the PPF: Please keep the Condren Family in your prayers for strength and peace- for when you have peace you are in oneness with God.

 
Tyler is a pretty typical 6th grade boy. He is 11 years old and enjoys playing video games and playing baseball. His favorite team is the Baltimore Orioles. He is close to his 9-year-old sister, Hannah, but like most siblings they constantly get on each other’s nerves. Despite having a high functioning form of autism and ADHD he still excels in school. He is an honor roll student at Walkersville Middle School and plays drums in the jazz band.

His battle with cancer began on April 3, 2008 when he went to the doctor’s for what everyone thought were headaches caused by allergies. His pediatrician could not find a reason for the headaches so he was sent to the hospital for testing. A CAT Scan revealed a mass, which they said was likely a brain tumor. Four days later at Children’s National Medical Center he had surgery to remove the tumor.

Tyler’s cancer turned out to be a very aggressive form known as Glioblastoma.   Unfortunately, Tyler’s tumor did not respond to the standard therapies of radiation and chemo. His tumor has grown and spread throughout his brain leaving the doctors with very few options for treatment. Although Tyler is stable for the time being, if his tumor doesn’t respond to current therapies, it will likely prove to be fatal in a few months. His parents have been scouring the internet looking for any hope with alternative therapies. These treatments will be extremely expensive and insurance will not cover them.

Please visit http://www.caringbridge.org/visit/tylerc for on going updates.
 

 

Fundraising Events planned for Tyler
Thank you for your support!

 

Hair’s How You Can Help

Old Towne Hair Design & Colour Studio is sponsoring a fundraiser for Tyler. The day’s collections will be donated to Tyler Condren’s fund.

Please join us in supporting this family in need and treat your family to:

An impressive Haircut for adult/child
suggested donation - $35/$15 (adult cut regularly $55)
A soothing seated neck and hand massage - $15

A raffle for Incredible Old Towne Gift Baskets and more

 

SUNDAY SEPTEMBER 21,2008  1:00-6:00 pm

 

Old Towne Hair Design & Colour Studio

201 Loudoun Street SW, Suite A

Leesburg, Virginia

703-779-2224

 

PLEASE CALL TO RESERVE YOUR TIME,

WALK-INS WELCOME

 

All other donations are gratefully accepted.

Make checks payable to:  PPF Inc.

Click for Printable Flier for this Event!

 
 

Please email Debbie at debbie@ppfinc.org for more information about the PPF, Inc.

Click this link to make a Donation to any Recipient!

Our mailing address is:
PPF, Inc.
11102 Eagletrace Court
New Market, MD 21774-6704

 

 

 
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